My Top 5 platitudes and phrases NOT to say to a parent who has a child with special needs Is she high functioning? Ex-cuuuuuse me?! How can there even be any kind of measurable answer to that? As compared to what? or whom? or when? Would it make you feel better if I […]
God is the good Author and Life is filled with Plot Twists and Surprising Adventures Just when I thought I knew where the story was going- along came a Surprising Plot Twist! [Tweet “Let #God write your #story- He has the #best endings in mind.#trust”] Have you ever surprised yourself? Sometimes I question—- scratch my […]
Is Life a True or False Test? Bethany may never learn higher math or the periodic table, but God showed us early on THE most important thing she can ever learn. Down Syndrome can’t stop Bethany from learning to understand and know God in a personal way and learn to live by His truths. #PrimeDirective […]
I John 4:17 The Message God is love. When we take up permanent residence in a life of love, we live in God and God lives in us. This way, love has the run of the house, becomes at home and mature in us, so that we’re free of worry on Judgment Day…..There is no […]
Growing Up Down Syndrome, ready or not, here it comes. It’s never far from my mind that special needs present special challenges.
Do you ever wonder if God is really in control of it all? Does everything happen for His reasons? Is life just random chances or is God lovingly in charge of it all? God’s Goal for Us: [Tweet “#God wants you to be so convinced of His #goodness, that nothing can shake your trust in […]
The entrance of special needs, disabilities, or chronic challenges can suck the dreams right out of our lives. Maybe, even ignite a nightmare or two. There are dreamers who dream unrealistic dreams— And then there are realists who close their eyes to all dreaming— but I believe we need to ask our Great […]
“It makes me really mad when people don’t treat everyone with respect.” Spencer Manning, 8th grade, advocate, hero, friend 3 For the past 8 years, our family has been uber blessed providing after school and summer care to Spencer and Amy. They have become our Framily. (see post on Friends + Family = Framily) […]
Children with “Special Needs”, most important “need”, is to be introduced to and grow in the knowledge of God as their Heavenly Father! *just like everyone else 🙂 Don’t believe the lie that someone who is limited or challenged in the area of intellect- cannot experience God. We are all born limited in […]
“Mom! I can’t find my Bible Verse in your phone Bible, Mom!” I looked at my screen and double checked. “What’s the Bible verse again, Bethie?” “Ephesians 2:8,9 – It is by grace that you have been saved, through faith. It is a gift of God, not by works, so that no one […]
Brandon Heath sings a poignant song, Give Me Your Eyes. The chorus is this: Give me your eyes for just one second Give me your eyes so I can see Everything that I keep missing Give me your love for humanity Give me your arms for the broken-hearted Ones that are far beyond my reach. […]
Hustling into the bedroom, determined to “hurry” Bethany along so we could get to school on time, I stopped abruptly. Bethie was sitting in the middle of the floor, still in her pajamas, sporting a blonde wig. “Beth- you need to get dressed for school.” “This is what I’m wearing today mom. I decided.” “Well, […]
I feel crummy. Moriah is stressed out in her college Biology class and I wish I could have a redo. While I still am convinced home schooling was the better path for our children, ONE of the weaknesses I had in home schooling was not giving enough written tests. In this sense, in this “assessment […]
The Tower of Babel via Genetic Engineering is rising again to the heavens. People blindly come and worship at the scientific DNA altar as Doctors routinely pressure (cough- offer) prenatal testing to “help” parents make a decision about the desirability of keeping their offspring. (aka children) w Down Syndrome testing was an easy beginning […]
“Mommy! I SAY…… I want to work at the hospital.” d “MMMhmmm. I know.” I murmured. 100 times of hearing that sentence in the last 24 hours had me scrambling to think of anything to get Bethany Re- Directed. d s Bethany gets “fixated” “stuck” “embedded”- Focused on what she wants- She keeps talking about […]